When you can't take real bath EK will help make a sink bath so fun! Maugs loved the tub to herself!
Friday was a tough afternoon on this momma. The feeling of your child being put to sleep in your arms is something I never want to experience again. We are still fighting ITP and the next step since the IVIG did not help is steroids. But in order to do steroids they have to do a bone marrow test to rule out luekemia entirely. The doc still says she has no signs but if there is something there a steroid would progress it faster than desired. This was a procedure they did in the blood doc office (no clue what you call it!), they are connected to the hospital should there be an issue. Poppa stayed by her side the whole time and I cried in the other room. Yes this day took the air out of me. No surprise, she did fabulous and recovered as expected. One positive is you head home an 1hour after recovery. So back home and we have to wait the weekend for the update on Monday. Yes, even in the medical field people don't work a whole day on Friday. The update we want is that we can move forward with steroids but I'll be honest that is where I am really struggling. I am not a fan of the side effects these can bring and so on. We have done a lot of research and as you read about ITP and talk to the doc the hardest part is the body has to get rid of this disorder on its own. If her levels were not so low we could let it run its course, but with the very low levels she has the risk is too high. So that is where we are. All the thoughts and prayers are very much appreciated. We will get through this just like we will get through the winter storm headed our way tomorrow...8-12 inches of snow, really?!!!
Donuts make things better !
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